Last updated: October 2, 2026
Thank you for taking the time to read our privacy policy (the “Privacy Policy”). At Akeso Network LLC (“What Happens When”, “we”, “our” or “us”), your privacy is of the utmost importance. This Privacy Policy sets out how we collect, use, process, store, and disclose your personal information on whathappenswhen.org and (the “Website”), and in outreach to share stories about what’s possible when people get the care they need (collectively, the “Platform”). By accessing, using, or supporting our Website and Platform you freely and expressly consent to the collection, use, processing, storage, and disclosure of your personal information as set out in this Privacy Policy.
1. SOURCES OF PERSONAL INFORMATION
2. CATEGORIES OF PERSONAL INFORMATION WE COLLECT
3. BUSINESS PURPOSES FOR COLLECTING PERSONAL INFORMATION
4. HOW WE DISCLOSE PERSONAL INFORMATION
6. COOKIES AND TRACKING TECHNOLOGIES
11. CHANGES TO THIS PRIVACY POLICY
- SOURCES OF PERSONAL INFORMATION
We may collect personal information that you provide when you:
- Visit our Website.
- Sign up for our email newsletter, or other communications.
- Interact on social media such as liking, commenting, or direct messaging our profiles.
- Contact us.
- CATEGORIES OF PERSONAL INFORMATION WE COLLECT
Information you provide when visiting or using our Website:
- Basic contact information such as name, email address, and city, state, and zip code of residence.
Information we collect automatically:
- We may automatically collect metadata and analytics for your use of our Website, including IP address, device information, date/time of visits, new or returning visits, products viewed, page response times, URL clickstreams, how long you stay on our pages, what you do on those pages.
- We may use cookies, beacons, pixel tags, and other similar technologies to collect additional information automatically as you interact with the Website and to personalize your experience with our Website. Learn more about our cookie use below.
Information from third parties:
- When you interact with our Website or through our brand on a social media platform, we may collect certain information that you make available to us such as website metadata, your social media account ID, your social media ‘likes’, click-throughs to our Website, or custom interactions. We may combine this information with information provided by third-party data providers in order to communicate, advertise, or market our Platform to you.
We may also collect personal information with your consent.
- BUSINESS PURPOSES FOR COLLECTING PERSONAL INFORMATION
We use the personal information we collect for the following purposes:
- To provide and improve our Website and Platform.
- To communicate with you, including via our newsletter.
- For marketing or promotional purposes.
- For other business and legal purposes, such as to detect and prevent fraud.
- For any other purpose with your express consent.
- HOW WE DISCLOSE PERSONAL INFORMATION
We may disclose your information with your consent. We may also disclose your information with our corporate affiliates, as well as vendors or service providers, which includes:
- Contact information to businesses and service providers who help us communicate with you. For example, we disclose your information to 3dna Corp. (NationBuilder) who helps us send our newsletters.
- Automatically collected information associated with our website analytics and other service providers who manage and optimize our Website.
- Automatically collected information to businesses, service providers, and third parties that provide marketing and advertising services (see ‘Cookies and Tracking Technologies’ for more information on your choices with these services).
- For any other purpose with your express consent.
In addition, we may disclose your personal information in order to:
- Protect the legal rights of our company, our employees, our agents, and our affiliates.
- Protect the safety and security of our customers.
- Detect and protect against fraud.
- Comply with law or legal process. For example, in certain situations, we may be required to disclose personal information in response to lawful requests by public authorities, including to meet law enforcement requirements or a court order, subpoena, or other judicial, administrative, or investigative proceedings.
- Conduct due diligence or complete a legal transaction related to the sale of our business or any assets. For example, we may disclose your personal information with potential acquirers, mergers, or partners exclusively to evaluate the proposed business transaction or organization change. You will be notified via email and/or a prominent notice on our Website of any change in ownership or materially different uses of your personal information, as well as any choices you may have regarding transfers of your personal information.
We may disclose de-identified, aggregate, or anonymous information for any purpose. This means that the information does not identify specific individuals.
- YOUR PRIVACY CHOICES
You have the right to exercise the following choices with our use of your personal information:
- Access or correct the personal information we maintain about you.
- Delete the personal information we maintain about you. Please note we may be required by law to retain certain information in compliance with accounting, tax or other legal obligations.
- Opt out of certain uses of your personal information, notably:
- Marketing Emails: To opt out of marketing e-mail communications, you may click the ‘unsubscribe’ link in the marketing emails. We may continue to send you non-commercial service messaging if legally necessary.
- Targeted advertising using cookies or emails: Refer to our ‘Cookies and Tracking Technologies’ section below for your choices.
- Our use of your photos/videos, reviews, social media posts on our website or social media.
You can exercise these rights by contacting us at contactus@whathappenswhen.org.
- COOKIES AND TRACKING TECHNOLOGIES
Like many companies, we use cookies and similar technologies (such as clear gifs, web beacons, tags, and similar technologies) to collect information about your browsing activities, your interactions with our Website, and to serve targeted ads and for the purposes described in this Privacy Policy. There are a number of ways to opt out of having your online activity and device data collected through these services, which we summarize below:
- Opting Out of Cookie Use in Our Cookie Preference Center. You can opt out of cookies via our cookie preference center.
- Targeted Advertising Using Your Email Address. If we have collected your email address, it may be used for targeted advertising on other websites, including through social media. To opt out of this use, please email us at contactus@whathappenswhen.org.
- With Each of Our Advertising Vendors Individually. The following third party advertising services partner offers opt-out features that let you opt-out of use of your information for interest-based advertising or profiling:
| Third Party Advertising Services | |
| Google Advertising Opt Out | |
Please note that because these opt-out mechanisms are specific to the device or browser on which they are exercised, you will need to opt out on every browser and device that you use.
- SECURITY
We maintain reasonable safeguards to protect against unauthorized access, use, modification, and disclosure of personal information in our custody and control. Despite our efforts, we cannot guarantee that unauthorized access or use will never occur. It is important that you take steps to keep your information safe and secure.
- RETENTION
We will retain your personal information only for as long as it is necessary for the purposes of fulfilling our Website and Platform or otherwise as described in this privacy policy, unless a longer retention period is required or permitted by law (such as tax, accounting, or other legal requirements). When we have no ongoing legitimate business need to process your personal information, we will either delete or anonymize such information, or, if this is not possible (for example, because your personal information has been stored in backup archives), then we will securely store your personal information and isolate it from any further processing until deletion is possible.
- CHILDREN’S PRIVACY
We do not intentionally collect any personal information from children under the age of 18. If you believe we have obtained personal information associated with children under the age of 18, please contact us at contactus@whathappenswhen.org and we will delete it.
- THIRD-PARTY LINKS
Our Website and Platform may contain links to other websites or services. We do not exercise control over the information you provide, or is collected by these third party websites. We encourage you to read the privacy policies or statements of the other websites you visit.
- CHANGES TO THIS PRIVACY POLICY
We may update this Privacy Policy from time to time as we update or expand our Website and Platform. If we make material changes, we will post the updated Privacy Policy on this page with a ‘Last Updated’ effective date of the revisions and will endeavour to alert our email subscribers. We encourage you to look for updates and changes to this Privacy Policy by checking this page when you access our Website and Platform.
- CONTACT US
If you have any questions about our privacy or security practices, or if you would like to submit a privacy request, you can contact us by email at contactus@whathappenswhen.org or at:
Akeso Network LLC
548 Market Street PMB 87527
San Francisco, CA 94104